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Name: noreen From: Sanborn Iowa E-mail: norbud@mtcnet.net	was told of this website by a friend whose great grandchild was found to have this disease about one month ago. We will certainly pray for a cure or help for this disease. Added: August 17, 2008
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Name: Tamara Lomeli From: California E-mail: Tamaralomeli@verizon.net	My husbands cousins baby recently passed away from sma. He lived only four short months with this horrible disease. Thank you for your website and the stories and information you provide. It helps to know that we are not alone and can help spread the word about the condition that affected our family member. In loving memory of Michael Sebastian Torres. Thank you so much, Tamara Lomeli Added: July 15, 2008
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Name: clair From: uk E-mail: clair_ov_parr@hotmail.co.uk	Private post. Click to view. Added: June 24, 2008
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Name: Kathleen M Freitas Krajewski From: Buckeye, AZ E-mail: believeanyway@yahoo.com	I was feeling sad I have not had the opportunity to meet my grand daughter in IL yet. She made it to two years old. She does have mothers family however thankfully. I read one grandmother who said she has two little ones with SMA1. My heart breaks for you. My close little grand daughter here also has Autism with several medical problems. I have folks that say since her spine is so deformed she will not live long. But I learned a long time ago that no one can say when GOD is ready to take his angels except GOD. I am the one learning from her and them, not the other way around. I am lucky both grand daughters have passed through my life, even if one has been from a distance. We Love You Allyson Krajewski born with SMA1 2/2/2006. And all our other 7 grand babies. GOD BLESS U ALL and KEEP YOU IN HIS GRACE Sincerely, grandma and grandpa Added: June 8, 2008
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Name: autum From: bucyrus E-mail: dangerouse_gurl@yahoo.com	hey this is autum black i am 15 yrs old i have a lil cuzzzin and he has sma type one and i think too and i thank that is very sad to have. i feel that the children are paying for this deadly known decease and they are sufering all the bad dangers they have to face like ......sugery....and all kinds of BAD dangers etc...and the poor parents who has to set there and wonder why the babys are like that i think that the babys shouldnt have to suffer but you no wat muh lil cuzzins is sufferring this illness right kno and i kno it is a very bad geneic killer for babys under the age of 2 yrs old i think that they are very preaciose baby and for all of the parents out there with babyboys and babygurls i am very impressed i love baby. and i dont ever wanna see a baby go through wat muh lil cuzzins is going threw .today he has a micky right kno and thank the holy godd that he is still here he is passed the age of tooand that precoise baby is still alive i love him dearly his namr is nathan lee banks i love you baby boi Added: May 25, 2008
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Name: autum From: bucyrus E-mail: dangerouse_gurl@yahoo.com	hey this is autum black i am 15 yrs old i have a lil cuzzzin and he has sma type one and i think too and i thank that is very sad to have. i feel that the children are paying for this deadly known decease and they are sufering all the bad dangers they have to face like ......sugery....and all kinds of BAD dangers etc...and the poor parents who has to set there and wonder why the babys are like that i think that the babys shouldnt have to suffer but you no wat muh lil cuzzins is sufferring this illness right kno and i kno it is a very bad geneic killer for babys under the age of 2 yrs old i think that they are very preaciose baby and for all of the parents out there with babyboys and babygurls i am very impressed i love baby. and i dont ever wanna see a baby go through wat muh lil cuzzins is going threw .today he has a micky right kno and thank the holy godd that he is still here he is passed the age of tooand that precoise baby is still alive i love him dearly his namr is nathan lee banks i love you baby boi Added: May 25, 2008
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Name: malay From: United States E-mail: malay.guerrero@yahoo.com	I WANT TO HELP FIND A CURE! Added: May 1, 2008
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Name: Tina Estep From: Pulaski Virgina E-mail: esteptina@msn.com	My only grandaughter was 3 months old when we found out about SMA. She had typeI. She went home to be with the Lord on her 9 month birthday. We had never heard of SMA until our Alysa was born.Please if there is pamlets that can be given out or anything to help people have more understanding of this killer let me know Added: April 17, 2008
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Name: Rene Rose From: Zanesville, Ohio E-mail: rrose40@hotmail.com	Just looking around, bad time of the year, my daughter, DANIE LUCKETT, died from this disease in 1992, it is amazing how far it all has came,it is sad any parent or family should have to go through this, but it really is great to have the support from everybody on this wonderful site, God Bless You All! Added: April 3, 2008
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Name: Christina Roth From: Indiana E-mail: hott_aunti86@yahoo.com	My son was born with SMA, how we found that out was he had a hand drop. We had to go to Rileys children hospital in Indy and they ran test on him and we he was 2 1/2 months he was diagnosed with this diease. We first spend a month down there got him ok to come home. He came home on an oxygen machine and a feeding tube and other gadets and we were home for a week until he was having trouble breathing so we had to go back to indy got put back on life support because of his lungs. The doctors said that he wouldn't be able to get off of it and so I had to make a decision and 4 days before he turned 4 months old he passed away. I miss him so much and I hope that someon can find a cure to help those other babies survive!! Added: March 27, 2008

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