We are the Ortegos, and these are our daughters...

Holly Ann

Julia Marie


Our girls were both born with Spinal Muscular Atrophy (SMA) type one.

Holly Ann became our angel in heaven on April 3rd, 1997, at the tender age of 21 months.

In 2003, we were blessed with her baby sister, Julia Marie.

Like her big sister, Julia also has the most severe form of SMA.

However, by the grace of God, there are new ways of managing this disease that are allowing Julia to live a longer, healthier life.

Our Princess Julia turns FOUR years old on February 5th, 2007!!!

Did you know that Spinal Muscular Atrophy is the #1 genetic killer of children under the age of two?  Most people have never even heard of it!  To learn more about SMA, please click here.

If your child is newly diagnosed with SMA, please visit here.

If you would like to donate money to help families living with SMA, please click here.




Supported by SMA Support

You are listening to "In My Daughter's Eyes" by Martina McBride

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