Hi, my name is Kyle James Gundy.  I was born on Novemeber 1, 2004. I am the second son of Michael and Jana Gundy.  I have a brother, Tyler Michael, who is exactly 18 months and one day older than me.  At six weeks of age, my mother took me in for a stomach ache and we left a neurologist's office with an unconfirmed diagnosis of spinal muscular atrophy.  My family was in shock. We had nothing like this in our family, that we knew of.  I had lost all of my reflexes and most movement.  Two weeks later, we got the phone call that changed all of our lives forever.  I had sma type 1. I probably wouldn't live to 8 or 9 months, 2 if we were lucky.  No, there was nothing you can do for him, just take him home and love him. What? My parents already loved me.  So, they took me to St. Louis to be in a clinical trial to slow down my disease.  They also took me to the best doctor in the world, Dr. T.L. Carey.  He told my mommy and daddy that there was hope and that there were things we could do to help me.  At 4 1/2 months of age, I got aspiration pneumonia. I had a gtube and fundo done to eat.  The staff at this hospital I was at were VERY incompetent, I almost died twice and couldn't be extubated, so they transferred me to Dr. Carey's hospital and two months after I first went in the hospital, I came home! Mommy and daddy switched me to sodium phenylbuterate but in the switch, I lost my arm and head movement. Mommy was upset, but she didn't dwell on it.  I now love watching tv, movies and playing with my switch toys. I tap a switch with my foot and make them go. I'm getting a powerchair which will be used to run over my big brother.  Mommy wants everyone to know that we are very happy and not to feel sad or sorry for us. God made who I am and everyone loves me!  God made me special and he loves me very much!